We got A call:

Friends and Family,

After 2½ long months we've finally heard from Pittsburgh. It has been very hard
waiting for them to make a decision, especially when we thought it would be only a
few weeks. Both Heart and Liver transplant teams met on Monday. The Liver
transplant team decided it was a go on their end if the Heart transplant team is
ready. They want us to travel back to Pittsburgh again so we can make a group
decision and have us meet with all the Heart transplant Dr’s. They are saying
she is a very high risk for the surgery because she is a congenital heart
patient and has had 4 open heart surgeries. They are still not sure if she
should have the surgery now while she is still some what healthy, or wait a year
or so until she gets a little sicker. The risk is very high so they are trying
to get the timing right.

So the plan is:
1. For us to go to Pittsburgh in a few weeks, for conversation and possibly a few more test.
2. Go over and be clear on the risks with all of the Heart Specialists,
3. Help Melissa make a decision and go over it with her family.

I think one of the hardest parts of this is it’s not a simple straight up
decision. It’s a life and death20decision that they want you to make. How can
anyone know that answer. We all say to leave it in Gods hands which I truly have
always believed. My question for everyone is what does that mean to you? Leave
it in Gods hands.

As a mother all you ever want is for your child to be happy and healthy. I want
that for Melissa with all my heart. This is a decision that she shouldn’t have to
make, but will have to. How many of us would be able to make that decision.
Should we have the surgery now with the high risk? Should we wait a year or so?
Will the risk be the same or higher? What would we do if we had a 80/20 chance?
Would our answer be the same for us, or would we have a different answer if it
were one of our children?

Melissa, I know that what ever decision you make it will be the right one. We
will all stand behind you with our love and prayers. We will all have our arms
wrapped around you with lots of hugs. We love you my Dear Melissa.

Judy